May 17, 2012 | Subscribe

Recently diagnosed with stage 4 cirrhosis with hep c I'm 29

Posted in Group: 

Hi everyone my name is katie. in december of last year i was diagnosed with stage four liver cirrhosis and hep c. I just found out friday january 10th that i need a liver transplant. i'm completely devestated and don't know what to do. the 17th i have to get a hysterectomy because of all of my bleeding issues i have going on. i have two boys 21/2 and 5 1/2. if i didn't have them i don't think the news would have been so depressing. but i want to live for my children and i am determined to beat this. anyone have any advice or a similar story? what about home remedies that i can do to make myself feel better. i'm in a lot of back pain and have major cramps. on birth control every four hours to control the bleeding and i have to get two bags of plasma and a bag of platelets before i get my hysterectomy next week my platelets are 50,000.....

katie

 
By CK on Tue, 02-14-12, 09:00

All I can say is I am so sorry that you are suffering through so many major health issues at the same time. What is the connection between the cirrohosis and the issues leading to a hysterectomy, or are they completely unrelated?

I hope you do well in surgery and that your name comes up quickly on the transplant list.

You are in my thoughts-
CK

Sometimes I believe in as many as six impossible things before breakfast-Alice in Wonderland

Support Points: 37295
Badges 
Black Belt in SupportBrown Belt in SupportPurple Belt in SupportBlue Belt in SupportGreen Belt in SupportRed Belt in SupportOrange Belt in SupportAqua Belt in SupportYellow Belt in SupportWhite Belt in Support
Offline
By katieshelby on Wed, 02-15-12, 00:06

my platelets are so low that everytime that i havea period i bleed pouring for six weeks or more.... doctors dont want me on so much birth control because my liver cant handle it. thank you for reading my post :) and thanks for the well wishes for friday. i dont get on list for one year :(

Support Points: 40
Badges 
White Belt in Support
Offline
By CK on Wed, 02-15-12, 10:37

Good Lord-why one year?!

Sometimes I believe in as many as six impossible things before breakfast-Alice in Wonderland

Support Points: 37295
Badges 
Black Belt in SupportBrown Belt in SupportPurple Belt in SupportBlue Belt in SupportGreen Belt in SupportRed Belt in SupportOrange Belt in SupportAqua Belt in SupportYellow Belt in SupportWhite Belt in Support
Offline
By katieshelby on Thu, 02-16-12, 00:35

because i used to drink so they have to have a year of proven sobriety before i even get on the list. it's so frustrating

Support Points: 40
Badges 
White Belt in Support
Offline
By Sammy566 on Fri, 03-09-12, 22:34

Katie,
You need a liver transplant?
Or you will eventually need a liver transplant.
sammy

Support Points: 30
Badges 
White Belt in Support
Offline
By boen96 on Sat, 03-10-12, 04:18

The last 10 days I was in the hospital with stomach bleeding. Hemoglobin at 5 and Platelets and 13000. I got 11 units of blood and 2 units of platelts and plasma. Then I got lazer surgery on my stomach to stomach bleeding to last a little longer. You can do this. Have the surgery. Get the platelets and hang on. Hang on tight.

Zackie V Boen

Support Points: 30
Badges 
White Belt in Support
Offline
By tonir54 on Sat, 03-24-12, 16:07

I am so sorry Katie. I found out I have 3rd stage, not from drinking and I have been really depressed. Yours is much worse than mine. I will pray for you. Try and be strong for your kids. God will watch over them and keep you strong.

Support Points: 30
Badges 
White Belt in Support
Offline
By BIG MIKE on Mon, 04-02-12, 15:32

HI MY NAME IS MIKE I LIVE IN PHILA.PA. I LEARN IN JULY HCV AND NOW I HAVE STAGE 4 CIRRHOSIS AND THE BEST THING IS NO MEDICAL I CALL AND IT STARTS AT $800 AND I HAVE TO WAIT A YEAR.ANY IDEAS ON MED.COVERAGE

Support Points: 20
Badges 
White Belt in Support
Offline
By EricasApple on Tue, 05-08-12, 22:15

Wow.. i seriously thought that I was the Only one. I am also 29, also stage 4... Hepatitis c that i was diagnosed with at 20 when i became jaundiced and rather ill.. Just was doing a little research online and for the heck of it put in "cirrhosis 29" or something close to that and didn't think I would actually find anyone in the same boat as me. The only people that seem to be in the same stage of this as me are in the 50+ range. Right now I am typing this on my cell phone... So it's rather annoyingly slow and I would really like to elaborate more on my situation... But I wanted to post just Something here right away. I will come back from the computer soon!

Support Points: 30
Badges 
White Belt in Support
Offline

Follow supportgroups.com on:

The information provided on SupportGroups.com is designed to support, not replace, the relationship that exists between a patient/site visitor and his/her health professional. This information and interaction provided on this site is solely for informational and educational purposes and does not constitute the practice of medicine. Information on this site does not replace the advice of your physician or other health care provider. Neither the owners or employees of SupportGroups.com nor the author(s) of site content take responsibility for any possible consequences from any treatment, procedure, exercise, dietary modification, application of medication or any other action which results from reading this site. Always speak with your primary health care provider before engaging in any form of self treatment. Please see our Legal Statement for further information.

Join SupportGroups.com

Find a Support Group That's Right for You

What Other People Are Saying

 

Top Contributors: 1 day

UserSupport Points
kc55320
Positive Vibes300
drillteamlover200
CK190
mstryder170
April170
MaluLani140
Avee140
Suzee120
JessicaC120

Who's online

There are currently 9 users and 837 guests online.

supported