Living with Cirrhosis

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Hello my name is Kim and i have been diagnosed with Cirrhosis 2yrs ago. I am here to gather as much information as possible wanting to learn as much as I can.Lately tho I have been experiencing new things, I am having trouble concentratin,focusing,remembering things,blurred vision,for the last 2 weeks i have been having trouble sleeping. I have other health issues along with this I have COPD,emphysema (spelling_),high blood pressure. And in August of last yr I had a simple knee scope done,with a spinal, and after the spinal wore off they asked me to get up I said ok but when I tried i got my right leg down but i was unable to move my left leg. so the outpaitent turned out to be a 7 day stay in the hospital, and still to this date I am still doing theraphy to try to get the leg to have movement and no such luck :( so I have alot of things goin on:(

So I was wandering if any of these sypmtoms that i am starting to have for the last few weeks has anything to do with the liver..I called the liver specialist today and talked with the nures she is going to give the details to the doctor and she will let me know what i need to do tomorrow..ok I think I took up enough of your time and any input would be greatly honered :)
Thanking you in advance
Kim

 

By puppydoglvr on Fri, 01-28-11, 11:26

Hi Kim, thank you for being here with us. I am here to offer you my help and support. I don't have Cirrhosis, but I am hoping that one of our wonderful Supporters will respond to your post and give your more insight. Has your doctor given you any additional insight and information as to what you're currently experiencing?

Sending you many positive vibes and wishing you all of the best.

By Kimmerz on Fri, 01-28-11, 12:10

ty puppy I sure hope so :) but I am waiting on a phone call from my hep doctor on what to do next.The nurse told me that the hep doctor would more n likely put me in the hospital where i do not want to go but if i have to i gotta do whats best..she told me that it might be HE or it sounds like it. and she said that if it is that it would be a no brainer and i would be amitted, she also said that it can turn on a dime and i could go into a coma and I dont want that..so as I sit here wandering i am more and more scared :)

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By puppydoglvr on Fri, 01-28-11, 19:22

Kim, I know that you will get the help and information that you want and need to guide you in the right direction, and to give you the best care possible. I am praying for you and sending you tons of healthy healing energy.

Sending you many positive vibes and wishing you all of the best.

By imkindly on Sat, 01-29-11, 09:59

Hi Kim,
The trouble concentrating (or memory problems) could possibly be a symptom of encephalopathy. I'm glad you've contacted your doctor about this.

Do you take Lactulose? (Many cirrhosis patients take lactulose to help control encephalopathy. Lactulose is a prescription liquid laxative that binds with ammonia and helps remove it from the body.)

There are many things that can trigger encephalopathy to worsen in a cirrhosis patient. (Some quick examples would be-- ammonia, some medications, infection, dehydration, electrolyte imbalances, internal bleeding, constipation, etc.) So I would expect your doctor to rule out possible causes one by one.

imkindly
http://forums.delphiforums.com/liverfailure

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By snowman449 on Thu, 02-03-11, 07:35

Hi Kim

I am a 80 year old male with (they say) end-stage cirrhosis.
I was hospitalized Jan, Feb and March 2010 with big time ammonia problems. If your liver is functioning good or your liver isn't able to the job of taking care of the ammonia level it sure will make you not be able to think well. My ascites, ammonia levels and other related problems is pretty well regulated.

I was diagnosed August 2009 and I'm still here!!

Make sure you eat at least 50 to 65 grams of protein daily..that wll help your strength immensley.

One of the first thing that goes is your bodys muscle mass..so do not underestimate the need for lots of protein.
there is a possibility that if you are far advanced that you will be put on 40grms a day to keep your ammonia levels low.
If I can help please let me know.
Bob

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By tee on Fri, 02-11-11, 03:29

i to found out recently that i have cirrhosis i was surprised because i have never been a heavy drinker or drug abuser i really dont know what i am feeling scared and and at the same time i am trying to except the reality of this disease.i have been going thru a emotional roller coaster my family has been real supportive thank god i have seen many people die of this and it was not a pretty picture right now i need the support of people that know what i am going thru. i am also doing some research on arcenic and cadium we lived across the street from ascarco smelter when i was little i lived there from 1951 -1963 we use to play in the fields everyday walk thru the water ponds play army almost everyday i even use to make mud pies and eat the dirt .any how i found out it takes 30 to 40 yrs to start feeling the symtoms i know it has afected my liver so to keep my mind busy i will continue my searc and keep coming back to this site for support from everyone thanks

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By tee on Sat, 02-12-11, 06:57

couldn't sleep very well my legs hurt and have cramps on and off feet got kinda swollen their now down and not so bad looking. have so much on my mind went to my great granddaughters birthday party at chucky cheese tried not to look so stressed out had fun played alot of games enjoyed time with my grandaughters and daughter sometimes were never grateful for what god has given to us i need to spend more time with my family. always have but since my husband died in 1994 kinda strayed away. thats how i found this site i was looking for wrinkle remedy and ran in grief group which i need in my life also just lost a son i raised a boyfriend of 9 yrs and 3 uncles and 3 cousins and 3 very close friends all in less then a yr. and now this i thank god i beleive in the lord or else i dont know where i would be. well i just am trying to deal with all this and am going to back to dr and see where and what to do next with my liver problem just need some support to get thru this and advise on what to eat that wont make me sick to my stomach. just had gallbladder surgery and am recovering need to find out what to do for my legs i try and keep active but sometimes they swell and have to stay off of them. guess i will try and go back to sleep please pray for me and i will do the same for you all. distressed.

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By imkindly on Sun, 05-29-11, 07:59

Hi tee,
Does your doctor have you on a low fat diet? Fatty foods can cause nausea (and sometimes pain and other problems) for cirrhosis patients.
(Plus with your gallbladder gone, you could have even more troubles trying to digest fatty foods.)

imkindly
http://forums.delphiforums.com/liverfailure

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By imkindly on Sun, 05-29-11, 08:01

P.S. - Sometimes the leg cramps can be caused by electrolyte problems.
So let your doctor know about the cramps. (Your doctor can run some quick and simple bloodtests to rule out electrolyte problems.)

imkindly
http://forums.delphiforums.com/liverfailure

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By Darlina on Sat, 02-19-11, 18:48

Hi Kim & Tee, I have had Cirrhosis since 2008.The 1st thing I would say is get yourselves Milk Thistle capsules,they help your liver to regenerate.I also have memory problems, fatigue,ect. I died 2x in one night,heart stopped completely.I was stuck in the hospital a month. It's very important to say to yourself,I'm healing,believe it.I have had problems with my sight when it comes to small print.Carrots are really good for your eyes,get some of them in your diet.Eat good things,Try plain crackers 1st if our worried about becoming ill.Try to have a real positive additude, when you find yourself being negative turn it around.I like to pray at night that I'm getting better, and pray for others too.Always find something everyday to be grateful for. that's how I handle things and I am getting better & better.

Darlina

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By calamity on Fri, 05-27-11, 10:32

My husband has cirrosis, and is on alot of drugs, they just put him on Xanax and when he takes it he becomes a zombie, I was wondering if his body can digest Xanax. Please help

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By imkindly on Sun, 05-29-11, 07:52

Xanax is a benzodiazepine drug.
(Usually cirrhosis patients are told to avoid benzodiazepines because they can cause encephalopathy problems to become worse.)
Is your husband seeing a hepatologist?

imkindly
http://forums.delphiforums.com/liverfailure

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